Read Sotos Syndrome: A Tribute to Sandy by Susan Q. Knittle-Hunter Free Online
Book Title: Sotos Syndrome: A Tribute to Sandy|
The author of the book: Susan Q. Knittle-Hunter
Date of issue: December 7th 2013
Loaded: 1274 times
Reader ratings: 5.2
ISBN 13: 9781494389338
Format files: PDF
The size of the: 322 KB
City - Country: No data
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The author relates a poignant account of her precious daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder. This book is well-written, accurately detailed, and full of emotion and contains a photo album, as well as detailed information about Sotos Syndrome.
Set in the 60's and 70's, as a young mother, the author struggles to obtain the appropriate necessities and rights for her daughter. Through these endeavors, she realizes the need for reform in all aspects of life related to disabled individuals and their families. She sets out to make those changes. The messages in this book are still relevant and important in today's world. This is a "must read" book from which everyone can reflect, ponder, appreciate, learn and gain inspiration.
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Read information about the authorSusan earned degrees in Psychology and Special Education at the University of Utah and spent many years as a teacher and case manager working with children and adults with disabilities. Susan became disabled herself with a rare metabolic disorder called Periodic Paralysis and is now the co-founder of the Periodic Paralysis Network an independent advocacy organization. She has written four books: "Sotos Syndrome: A Tribute to Sandy," "Living With Periodic Paralysis: The Mystery Unraveled" and "The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally," "A Bill Of Rights For Patients With Periodic Paralysis," "What Is Periodic Paralysis?: A Disease Like No Other" and has co-authored "Moments in Time: At Home in the Woods" with her husband Calvin Hunter.
Susan, mother of four children and grandmother to five, enjoys the forest and wildlife at her new home on the Olympic Peninsula in the North West. She is presently writing her next book and continues to work daily to help others. In her spare time, she enjoys genealogy research and reading about cooking, the paranormal, alternative spirituality and historical romance novels.
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